Part-time Communications and Outreach Coordinator

• Support essential activities to a small, rare disease nonprofit: outreach, development and fundraising, marketing, communications, and social media.
• Aid in the Foundation’s awareness, recruitment, engagement, outreach, and education efforts.
• Coordinate social media campaigns, email series, physical mailings, including content development for programs and events.
• Monitor, track and manage social media and ad campaigns; direct outreach to community members for participation in marketing and research activities.

This role directly supports the Cure GM1 Foundation's mission to advance research and treatments for GM1 gangliosidosis, an ultra-rare and fatal disease affecting children, by raising awareness, engaging the community, and driving fundraising efforts that fund critical research and drug development.

• Exceptional relationship-building and interpersonal skills.
• Experience with Canva, Photoshop, GSuite, Slack, Claude.
• Excellent verbal and written communication skills—inspiring, eloquent, and persuasive.
• Ability to think strategically while executing tactically, in a lean and resource-constrained organization; independent, hands-on, and motivated; highly disciplined with superior organizational skills and attention to detail.

Part-time position. Compensation not specified. Opportunity to contribute to a mission-driven organization with a small, dedicated team.

The Cure GM1 Foundation is a nonprofit founded in 2015 dedicated to advancing research, drug development, and possible treatments for GM1 gangliosidosis, an ultra-rare lysosomal storage disease that primarily affects babies and children. They support research programs, newborn screening projects, and engage with regulatory bodies like the FDA.