Application Guide

How to Apply for Hunter Health Intake Support Specialist

at Project Alive

🏢 About Project Alive

Project Alive is a nonprofit organization dedicated to accelerating research for a cure for Hunter Syndrome, a rare genetic disorder. Working here means directly supporting families and patients by connecting them to critical clinical trials, registries, and care resources. It's a mission-driven environment where your work has a tangible impact on a small, underserved community.

About This Role

As a Hunter Health Intake Support Specialist, you will be the first point of contact for families seeking information and support related to Hunter Syndrome. You'll manage incoming inquiries, collect and verify medical documentation, and guide families through the intake process for Project Alive's programs. This role is vital for ensuring that patients can access timely resources and potential treatment opportunities.

💡 A Day in the Life

A typical day might involve responding to emails and phone calls from families, collecting medical records, entering data into an intake system, and coordinating with healthcare providers. You'll also follow up on pending applications and provide updates to the team on intake metrics. The work is detail-oriented but deeply rewarding as you help families navigate a complex healthcare system.

🎯 Who Project Alive Is Looking For

  • Bachelor's degree required, master's preferred in public health, social work, healthcare administration, or a related field.
  • Experience in patient intake, customer service, or healthcare coordination, ideally in a remote setting.
  • Empathy and sensitivity when working with families affected by rare diseases; ability to handle confidential information with discretion.
  • Strong organizational skills and attention to detail to manage multiple cases and documentation accurately.

📝 Tips for Applying to Project Alive

1

Highlight any experience you have with rare diseases, genetic disorders, or patient advocacy in your resume and cover letter.

2

Emphasize your ability to work independently in a remote environment, as this role is fully remote and part-time.

3

Demonstrate familiarity with HIPAA and patient confidentiality protocols, as you'll be handling sensitive medical information.

4

Mention your proficiency with electronic health records (EHR) or intake management software, if applicable.

5

Tailor your application to show a genuine interest in Project Alive's mission; generic applications are less likely to stand out.

✉️ What to Emphasize in Your Cover Letter

["Your passion for helping families affected by rare diseases and why you want to support Project Alive's mission specifically.", 'Concrete examples of your experience in patient intake, coordination, or customer service, especially in healthcare or nonprofit settings.', 'Your ability to manage sensitive information with empathy and professionalism, and your comfort with remote work tools.', "How your educational background (bachelor's or master's) has prepared you for the administrative and interpersonal aspects of this role."]

Generate Cover Letter →

🔍 Research Before Applying

To stand out, make sure you've researched:

  • → Learn about Hunter Syndrome (MPS II), its symptoms, and current treatment options to better understand the families you'll support.
  • → Explore Project Alive's website, especially their programs, research initiatives, and recent news, to understand their impact.
  • → Research the Hunter Health program specifically to see how intake fits into the broader patient support ecosystem.
  • → Look up recent clinical trials or FDA approvals related to Hunter Syndrome to stay current on the landscape.
Visit Project Alive's Website →

💬 Prepare for These Interview Topics

Based on this role, you may be asked about:

1 How would you handle a distressed parent calling for information about Hunter Syndrome clinical trials?
2 Describe your experience with patient intake or case management, including any software you've used.
3 What do you know about Hunter Syndrome and Project Alive's role in the community?
4 How do you prioritize tasks when managing multiple intake requests and documentation deadlines?
5 Can you discuss a time you had to maintain confidentiality while coordinating care or support services?
Practice Interview Questions →

⚠️ Common Mistakes to Avoid

  • Submitting a generic cover letter that doesn't mention Project Alive or rare diseases; this shows lack of genuine interest.
  • Failing to demonstrate empathy or sensitivity for families dealing with a rare disease; this role requires a compassionate approach.
  • Not addressing the remote nature of the role; employers want assurance that you can work independently and communicate effectively online.

📅 Application Timeline

This position is open until filled. However, we recommend applying as soon as possible as roles at mission-driven organizations tend to fill quickly.

Typical hiring timeline:

1

Application Review

1-2 weeks

2

Initial Screening

Phone call or written assessment

3

Interviews

1-2 rounds, usually virtual

✓

Offer

Congratulations!

Ready to Apply?

Good luck with your application to Project Alive!