CONTRACT VIRTUAL COMMUNITY CONFERENCE COORDINATOR POSITION

• Assist in organization, coordination, planning, and execution of annual conference and/or online recordings.
• Serve as speaker liaison and provide technical support for recording and conference platform.
• Manage calendar invites, email, event marketing, and overall agenda and event schedule.
• Communicate with conference vendors and coordinate with Cure GM1; assemble and ship conference gift boxes for family attendees.

This role directly supports the Cure GM1 Foundation's mission to advance research and treatments for GM1 Gangliosidosis, an ultra-rare and fatal disease in children, by organizing a community conference that connects families, researchers, and advocates.

• Nonprofit event planning and execution experience preferred.
• Self-motivated, proactive, and collaborative communicator with exceptional relationship-building and interpersonal skills.
• Proficient in Excel, Word, Canva, Photoshop, GSuite, PowerPoint; very tech savvy with Zoom, webinar, and video conferencing event coordination required.
• Excellent verbal and written communication skills; ability to think strategically while executing tactically in a lean organization.

Contract position. No specific salary or benefits mentioned.

The Cure GM1 Foundation advances research, drug development, and treatments for GM1 Gangliosidosis, an ultra-rare lysosomal storage disease that primarily impacts babies and children, and supports the patient community.