Communications Manager

• Lead day-to-day digital communications including email, social media, and website management.
• Write, build, and send regular emails; maintain automated email programs and audience segmentation.
• Manage social media accounts, update website content, and own the weekly communications calendar.

This role amplifies the voice of a rare disease community, improving quality of life for patients and caregivers through effective communication, education, and advocacy.

• 5+ years of experience in communications, marketing, or social media management, ideally in a nonprofit or mission-driven setting.
• Demonstrated experience designing graphics/visuals for mission-driven communications.
• Strong writing and editing skills; experience with email marketing platforms (e.g., Pardot, Mailchimp).
• Comfort working independently in a small, remote team.

Part-time, non-exempt (hourly) at $31.25/hour (20 hours/week). Benefits include PTO, ICHRA health reimbursement (prorated), paid federal holidays, additional time off around winter holidays, 401(k) retirement plan, and eligibility for Public Service Loan Forgiveness (PSLF).

The International Pemphigus & Pemphigoid Foundation (IPPF) is a 501(c)(3) nonprofit dedicated to improving the quality of life for those affected by pemphigus and pemphigoid through support, education, awareness, advocacy, and research.