Part-time Communications Specialist

Core responsibilities:

• Develop and manage CureSHANK's social media presence across platforms, including Facebook, Instagram, LinkedIn, and TikTok
• Plan, create, and schedule engaging content to increase awareness and engagement
• Manage email campaigns, including newsletters, donor updates, and event communications
• Maintain and update our website with fresh, relevant content
• Support storytelling efforts by collaborating with team members to highlight our mission, impact, community stories, and research initiatives
• Track and report on analytics to measure the effectiveness of communication strategies

This role creates positive change by connecting with the rare disease community, raising awareness about Phelan-McDermid syndrome, and supporting the organization's mission to find treatments and cures through effective communication strategies.

Required qualifications:

• Proven experience in social media management, email marketing, and website administration
• Graphic design experience required (Canva and/or Adobe Creative Cloud)
• Strong writing and editing skills with ability to craft clear, engaging communication content
• Required experience with: Squarespace, Mailchimp, Canva, Adobe Creative Cloud
• Experience using analytics (GA4) and social reporting to track engagement
• Self-starter with excellent time management and organizational skills
• Background in medical or science writing or health journalism preferred
• Passion for nonprofit work and interest in rare disease advocacy

Compensation: $45-55/hour depending on experience and qualifications; contract position (1099)

Approximately 20 hours per week with flexibility to work remotely

No benefits available at this time

Infrequent travel (less than once per quarter) to live events with all related costs covered by CureSHANK

CureSHANK is a nonprofit research organization dedicated to finding treatments and cures for Phelan-McDermid syndrome (PMS), a rare disease.