Education Program Manager

Core responsibilities:

• Lead the development, maintenance, and ongoing improvement of SRNA's educational resources, including disease education materials, new member resources, and learning tools for patients, caregivers, and healthcare professionals
• Translate complex scientific and clinical information into clear, accurate, plain-language educational content across formats (written guides, research summaries, blogs, webinar scripts, video scripts, and other learning materials)
• Monitor emerging research, clinical developments, and best practices in rare neuroimmune disorders, and proactively recommend content updates and new resource needs
• Coordinate with SRNA's communications team to support distribution of educational materials through social media, blogs, email/community updates, and other outreach channels

This role creates positive change by developing scientifically accurate, accessible educational materials that improve the quality of life for individuals and families living with rare neuroimmune disorders, supporting patients, caregivers, and healthcare professionals worldwide.

Required qualifications:

• Bachelor's degree required in public health, health education, neuroscience, immunology, biomedical sciences, or a related field; advanced degree preferred
• 3–5 years of experience in health education, patient education, scientific communications, or related nonprofit or healthcare settings preferred
• Strong ability to synthesize scientific and clinical information and communicate it clearly to diverse audiences
• Excellent writing, editing, and organizational skills, with attention to accuracy and detail
• Project management skills, including the ability to multitask, prioritize deadlines, and thrive in a small, dynamic organization

Full-time position: 40 hours per week. Location is remote, based on where the Education Program Manager resides. Involves travel in the US 1–3 times a year. Requires some flexibility with occasional evenings and weekends due to global programming.

The Siegel Rare Neuroimmune Association (SRNA) is a not-for-profit organization dedicated to supporting children, adolescents, and adults with rare neuroimmune disorders including ADEM, AFM, MOGAD, NMOSD, optic neuritis and transverse myelitis, with the goal of improving their quality of life.