Director of Development and Community Engagement

Core responsibilities:

• Lead fundraising initiatives, family fundraisers, sponsorships, campaigns, and special events
• Identify and cultivate new revenue streams to ensure the organization's long-term sustainability
• Create engaging content for all social media platforms using Canva or other design tools
• Plan and execute awareness campaigns that highlight families, research, and community impact

This role makes a tangible difference for families affected by rare neurodegenerative disorders by growing fundraising, awareness, and community engagement efforts for the NBIA Disorders Association.

Required skills and experience:

• Experience in nonprofit development, fundraising, or community engagement
• Digitally-savvy, creative thinker who understands today's social media landscape and trends
• Highly organized, personable, and able to motivate and work collaboratively with volunteers, staff, and stakeholders
• Certified Fund Raising Executive Certification preferred

Flexible, remote, part-time role (up to 87 hours/month, $30/hour). Opportunity to bring new ideas, energy, and modern engagement strategies to an established, mission-driven organization.

The NBIA Disorders Association is a mission-driven organization focused on supporting families affected by NBIA disorders through advocacy, research, and community engagement.