Charity Manager

Core responsibilities:

• Coordinate volunteers and contractors supporting community engagement
• Manage charity communications and website
• Liaise with healthcare professionals, researchers and partners
• Support awareness, advocacy and pathways to best care
• Monitor and support public fundraising and grant applications
• Lead delivery of our annual community event
• Maintain systems, data and meeting administration

This role makes a tangible difference in a small organization by supporting people affected by X-linked hypophosphataemia (XLH) through community engagement, advocacy, and improving healthcare pathways.

Required skills and experience:

• A self-starter with strong organisational and communication skills
• Experience working in a charity, health or community setting
• Competent IT literacy, for remote management using Microsoft solutions
• Confidence to coordinate people and projects
• An interest in patient advocacy and improving healthcare pathways

Benefits include:

• Flexible working hours and location
• A supportive trustee board
• A meaningful role with visible impact for patients and families