Advocacy Program Coordinator

Core responsibilities:

• Work with the Director of Advocacy, the FARA Team and FA community to execute advocacy initiatives and programs that support FARA's mission
• Plan and coordinate FARA participation in specific advocacy programs including United Against Ataxia Hill Day, Rare Across America, and Rare Disease Week
• Develop relationships with elected officials at both the federal and state level to advance initiatives to expedite ataxia research
• Manage and grow FARA's advocacy contact database and facilitate outreach and communications with FA community members

This role creates positive change by advancing research for treatments for Friedreich's ataxia through advocacy initiatives, building relationships with elected officials, and coordinating programs that support the FA community.

Required skills and qualifications:

• Bachelor's degree required with understanding of the political & legislative process
• Proficient in Microsoft Office (Word, Excel, PowerPoint, Publisher) and Adobe Acrobat
• Strong written and verbal communication skills with attention to detail
• Ability to work independently and in a team setting with diverse groups of people

FARA offers competitive benefits including medical, dental, life, long-term disability and paid family and medical leave benefits, plus a 401K retirement plan. Salary range $53,000 - $63,000, commensurate with experience.

Friedreich's Ataxia Research Alliance (FARA) is dedicated to supporting the advancement of research leading to treatments for people living with Friedreich's ataxia (FA).